NATIONAL MYASTHENIA REGISTRY OF INDIA TODAY (NAMRITo)

Myasthenia can be managed effectively better studying & researching it in depth. Very sadly, little is known reliably about MG in our country. The goal of this registry is to build an independent & unbiased multi-centre collaborative database of individuals affected by MYASTHENIA across the length & breadth of the country- with no affiliation to any particular institution or practice or city or state. ANY ONE FROM ANY CORNER OF THE WORLD CAN ENTER NOW but they cannot be part of the national Registry. It is highly important that the information you provide here is accurate & reliable, so it remains a dependable platform for health care professsionals, researchers & policy makers to make a positive input into patient care, medical research & health care planning. And thereby one day to the quality of our own care & treatment. Please encourage every one with myasthenia to enrol here in about 10 minutes. YOUR PRIVACY IS IMPORTANT-All DATA IS FILED ANONYMOUSLY AFTER SEPARATING ALL IDENTIFIABLE BITS & TREATED AS COMPLETELY CONFIDENTIAL.

FOR HELP & ASSISTANCE: myastheniaregistry@gmail.com.

    DEMOGRAPHIC DATA OF THE PERSON AFFECTED BY MYASTHENIA

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    CONTACT DETAILS

    Please record your latest information in an acccurate manner, so that it should be easy to contact you reliably, if needed for research purposes. We ensure the utmost confidentiality of this information and will NOT be divulged to any unauthorised users.
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    COURSE OF MYASTHENIA

    Please cross-check your records & mention as accurately as possible the dates & years.
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    FOR MYASTHENIC MOTHERS ONLY

    Tell us if your new born child had any problem suggestive of weakness. NEONATAL MYASTHENIA can occur in babies born for myasthenic mothers but lasts only for weeks. It should recover completely as antibodies disappear from the baby.
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    SOCIAL CONSEQUENCES

    Myasthenia can affect a lot more than health. Consider all the effects the disease had on your own life & answer below.
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    MYASTHENIA TREATMENT

    Please LIST ALL THE TREATMENTS THAT YOU HAVE TRIED SO FAR
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