Newborn Screening: New Conditions Stakeholder input 2023

Die Datei kann in Ihrem Browser nicht geöffnet werden, weil JavaScript nicht aktiviert ist. Aktivieren Sie JavaScript und laden Sie die Seite noch einmal.

The Colorado Newborn Screening Program is seeking feedback from Colorado residents, stakeholders and interested parties regarding the appropriateness of adding new conditions to our screening panel. The three conditions under consideration for addition are as follows:

Mucopolysacchridosis Type-II (MPS-II)

Guanidinoacetate Methyltransferase Deficiency (GAMT)

Congenital cytomegalovirus (cCMV)

Any changes to the composition of the program’s panels must be approved by the Colorado Board of Health (COBoH) through the board’s public rulemaking process. An important part of the rulemaking process is soliciting and documenting feedback from the public. The survey below will serve as a key data collection tool for the stakeholder engagement process and includes questions as well as space for open ended feedback for each condition under consideration.

In the survey, you are asked to provide information about yourself and your relation to the Colorado Newborn Screening Program. We are collecting this information, so that we can provide details regarding our stakeholder engagement process to the COBoH. We will be monitoring responses as they are submitted, so that questions and concerns identified through stakeholder feedback are addressed efficiently at public meetings occurring throughout 2022 and 2023. Any email address submitted through the survey will be added to our distribution list for communication related to this process.

In Google anmelden, um den Fortschritt zu speichern. Weitere Informationen

E-Mail-Adresse *

Please list your name

Please list your connection to the Newborn Screening Community (check all that apply). *

Parent or guardian of a child with a false-positive screen result

Patient or family member of a child with a condition currently on the Colorado Newborn Screening panel

Patient or family member of a child with a condition NOT currently on the Colorado Newborn Screening panel

Parent or guardian (with normal test results or no experience with Newborn screening)

Pediatrician

Specialty Care Physician

Midwife

Primary Care Physician

Interested person

Vendor

Representative of a patient advocacy group

Sonstiges:

Pflichtfrage

Please identify your Colorado county of residence. *

Please identify your insurance status.

Commercial

Government

Uninsured

Sonstiges:

Auswahl löschen

Should MPS-II be added to the Colorado Newborn Screening panel?

Yes

Uncertain

Feedback on adding MPS-II to the Colorado Newborn Screening Panel

Should GAMT be added to the Colorado Newborn Screening panel?

Yes

Uncertain

Feedback on adding GAMT to the Colorado Newborn Screening Panel

Should cCMV be added to the Colorado Newborn Screening panel?

Yes

Uncertain

Feedback on adding cCMV to the Colorado Newborn Screening Panel

Senden

Alle Eingaben löschen

Gib niemals Passwörter über Google Formulare weiter.

Dieses Formular wurde bei State.co.us Executive Branch erstellt.

Sieht dieses Formular verdächtig aus? Bericht

Formulare