A rare disease is defined as a condition that affects fewer than 1 in 2,000 people. There are over 7,000 rare diseases, and many of these are genetic and have no cure. Patients with rare diseases often struggle to get a timely diagnosis, access to treatment and support, and are at a higher risk of disability and premature death.
The Department of Media Studies & IQAC, Christ Nagar College, Trivandrum in association with Focus Games (UK) organise a national webinar on to commemorate World Rare Disease Day as well as a health communication initiative on 28 February 2023 at 6:00 pm.
No registration fees.
E-certificates will be issued to those who participate and submit the feedback form.
SPEAKERS:
Dr. K Thangaraj
Director, Centre for DNA Fingerprinting and Diagnostics (CDFD), Hyderabad
TOPIC: Marriages and Rare Genetic Diseases
Dr. Mohua Chakraborty Choudhury
DST STI Policy Fellow, Centre for Policy Research - Indian Institute of Science (IISc), Bengaluru
TOPIC: Challenges faced by the rare disease community in India and community level interventions for supporting them
