Eating Disorders and People of Color and Indigenous Peoples Survey
Thank you so much for taking the time to participate. This survey was put together by Marcella Raimondo PhD, MPH, a queer woman of color who is a licensed psychologist specializing in eating disorders.
and Gloria Lucas who runs Nalgona Positivity Pride a Xicana in://
. For more information please check out websites.
- We ask all participants be 18 and older.
- This survey will take 15-20 minutes to complete.
- These results will be published. Do note individual summaries will not be published, just general summaries to respect privacies of individuals.
- Participants who have not received eating disorders treatment are welcome to skip questions that don't apply.
The information that we collect will help us better understand people of color and indigenous peoples who struggle with various forms of eating disorders, disordered eating, and eating problems. Results will be published to advocate for more resources for people of color and indigenous people who struggle with eating disorders, disordered eating and eating problems.
--Please be aware that questions in this survey may activate certain feelings and bring up negative past experiences. We encourage you to please have support or a form of self-care afterwards. Do know that you can opt out at any point.--
Here are other resources that may be of benefit for you:
1) National Eating Disorders Association Hotline
How old are you?
What city and state do you currently live?
Other mental illnesses (depression, anxiety, trauma, etc.)
What eating disorder do you identify with?
Binge Eating Disorder
Eating Disorder Not Otherwise Specified (EDNOS) or Other Specified Feeding or Eating Disorder (OSFED)
What is your gender identity?
What is your race/ethnicity?
African American/Black/African Descent
Native American/First Nation
Far East Asian
How many years did you have or currently have with your eating disorder?
While growing up did you ever see or hear about people of color with eating disorders?
Before your eating disorder development, did you diet/restrict?
Do you know of any family member that struggles or has struggled with an eating disorder? If so who in your family?
Did you or your family migrate to the country your currently living? If so how many years/generations approximately?
After the onset of your eating disorder, how long after did it take you to realize you had an eating disorder?
Did you ever receive professional treatment for your eating disorder? If so how long did it take you to receive treatment?
Did you face obstacles when trying to seek treatment (for example lack of finances or coverage or no treatment facilities in your area) if so what were they?
I did not have the finances for treatment
Transportation was an issue (not having a car, no public transportation near the treatment facility)
I could not take time from work/school for treatment
I couldn't get care for my children
The demographics of the treatment staff were completely different from mine
The treatment facility was not wheelchair accessible
I was too scared to get treatment
I felt shame for having an eating disorder
I thought eating disorders only happened to white cisgender affluent girls
The treatment facility felt unsafe (racist, classist, cis/heteronormative,etc- briefly explain in other)
My previous experience with health care was negative
I was denied to treatment or my health care needs were minimized when trying to get health care in the past
Facility did not accept or offer services for gender-nonconforming or transgender individuals
How did your family respond to your eating disorder? Were they supportive or were they unsure with how to support you?
Were you ever properly diagnosed with an eating disorder by a medical provider?
Were you ever in treatment for your eating disorder? If so, check off all the various forms of treatment you had
Partial hospitalization program/day program
Intensive outpatient program
School counseling program
While in treatment for your eating disorder, did you feel your identity was recognized and valued? If no check off the ones that applied to your experiences
I was misgendered
Assumptions were made about my sexual orientation
Racist comments or microaggressions were made about my race and/or ethnicity
Staff seemed surprised I had an eating disorder due to my identity
The clinic/center had culturally appropriated decorations
The clinic did not have eating disorder resources that matched my identity
I asked to work with a clinician of a specific identity and there was no clinician of that identity at the clinic
The clinic did not accommodate bigger bodies (chairs, scales, beds, blood pressure cuffs were for smaller bodies)
The clinic could not accommodate my work schedule
The clinic assumed had access to resources and finances
Inappropriate personal questions were asked about me and my cultural identity
Discriminatory treatment ( other patients had more time with staff, etc.)
To what extent was the treatment program as a whole able to meet your needs as a person of color and/or indigenous person? Please comment
What do you think caused your eating disorder? What factors do you feel may have led you to develop an eating disorder?
Many people describe their eating disorder as having a function (i.e., coping with stress, exerting control, or numbing emotional pain). Briefly, how would you describe the function of your eating disorder?
How can eating disorders treatment be more accessible to people of color and indigenous peoples with eating disorders?
What suggestions do you have for eating disorder treatment professionals and facilities when treating people of color and indigenous peoples?
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