BDSRA Memorial
The Batten disease community is one of support and strength, and we know that remembering loved ones is so important to you and your family. If you would like to have a name added to the Batten Disease Memorial, please complete the form below no later than July 8th, 2019.

We now have the capability to include photos in the Memorial, if you would like to include one please email one to no later than July 8th, 2019 (for best clarity, please use jpeg format). Additionally, each day during the conference, a memorial slide show presentation is shown of the children and adults who have passed away due to Batten disease, and the photo will be included in this presentation.

The Batten Disease Support and Research Association developed the Batten Disease Memorial in 2004 as a way of ensuring that children and adults who have died from this disease will continue to be remembered. You can view the memorial on BDSRA’s website at

If you have any questions, please do not hesitate to contact Tracy Kirby at either 614-973-6013 or

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