TSA will be providing special sessions pertaining to information on LongQT 8 and Timothy Syndrome during the SADS conference. Attendees will be able to meet Katherine Timothy for whom the condition is named due to her hard work in following cases of children with LongQT 8 that appeared to be atypical than the other types of LongQT syndrome. Members of TSA have worked hard to raise the money for this scholarship fund and we greatly appreciate their effort. It is intended to aid families and individuals who would otherwise be unable to participate in the Conference. If you can afford to come, it would be great to leave the scholarship funds for another family. If you’d like to help by raising money for your family’s expenses for the conference—or for research on Timothy Syndromes—we will be happy to help in any way we can. The scholarships are provided with the following requirements:
1) A limit of one scholarship per family.
2) Please register for the SADS conference and use code: TIMOTHY19 which will waive your registration feeshttps://events.r20.constantcontact.com/register/eventReg?oeidk=a07efy1k79vfef164c8&oseq=&c=&ch=
3) Assistance with one or all of the following: registration fees, hotel costs for up to 3 nights (one room up to 4 guests), and assistance with airfare/train.
4) A copy of the medical records* for all members of your family with a diagnosis of TS/LQTS 8. (We will provide more information on how to send these records as soon as you return this application to email@example.com which is due Aug 31).
*The requirement for medical records will help TSA to build a database of all types of LongQT 8 with various mutations. This will be the first official recorded database of LongQT 8 and Timothy Syndrome. TSA wants to continue its efforts to raise money for more research and awareness of these conditions and this database will provide important information for these efforts. If you feel you are unable to acquire these records, please make a notation on the application.
All applications will be treated with strictest confidence. The application deadline is August 5th for the 2019 conference. There are a limited number of scholarships available, so please turn in your application as soon as possible. Please keep in mind that if you receive a scholarship, you must make every effort to attend the conference sessions. Return this form to firstname.lastname@example.org by Monday August 5th.
TSA (The Timothy Syndromes Alliance)email@example.com/tsa