Tarlov Cyst Disease Foundation Relaunch Survey

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The responses to this survey will be used to relaunch the Foundation--refreshing our website, shaping a new strategic plan, and rebuilding ways to support and stay in touch with the Tarlov cyst community.

Name

Would you like to receive future communications from the Tarlov Cyst Disease Foundation?

Yes

Clear selection

Tell use about yourself. Please select the category / categories below that best describe you.

Person with Tarlov cyst disease

Family member of person with Tarlov cyst disease

Friend of person with Tarlov cyst disease

Tarlov cyst disease clinician

Tarlov cyst disease researcher

Industry / pharmaceutical professional

Nonprofit professional

Past Tarlov Cyst Disease Foundation donor

Past Tarlov Cyst Disease Foundation member

Other:

In your opinion, what is the most important work of the Foundation? Select up to three responses.

General Public Education

Patient Education

Patient Advocacy (e.g. insurance claims, disability insurance claims, etc.)

Medical Provider Education

Research

Other:

What would you like to see the Foundation accomplish in the next 3-5 years?

Which of the following activities are the most important for the Foundation to offer? Select up to three responses.

Downloadable Educational Materials

Research Grants

Medical Provider Education / Training, including continuing medical education

Webinars

Patient Surveys

General Public Education

Frequently Asked Questions Website

Virtual / In-person Patient Support Groups

Find A Doctor Website

One-on-One Patient Support / Advocacy

Downloadable Patient Advocacy Tools

Other:

Are you interested in volunteering for the Foundation?

Yes

Maybe, but I'd like to learn more.

Clear selection

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