Please fill out this form to tell us about your cancer experience. This information will be shared with members of the group. There is also a "Closed" group on Facebook - "EGFR Resisters Lung Cancer Patient Group" - that you can search for and ask to join. This link tells you about Facebook privacy settings for groups. https://www.facebook.com/help/220336891328465
Please - one entry per person with EGFR+ lung cancer. Caregivers should complete this form only if the person with EGFR+ lung cancer will NOT be completing the form.
Under no circumstances will the spreadsheet collecting this information be shared directly with anyone else. It is not collected under research protocols and thus not useful as is to researchers. We can use it to sort out information and answer questions about our members, for ourselves and for the medical and research communities.
We are committed to holding our members' information in confidentiality. We are relying on Google and Facebook security systems to protect the information we collect, and we are relying on each other not to copy and republish information that members may share with each other. We cannot guarantee total data security with 100% confidence. If at any point you would like to remove your data from the form, please let us know and we will do so as quickly as possible.
If you have any questions or need us to update your information, email us at email@example.com.