ACTon Resource Survey
Study Name: ACTon: Disability Accommodation sTories in placemeNt

Researchers Names: This project is led by York University Faculty members:

Dr. Iris Epstein
School of Nursing, Faculty of Health  
HNES, 104 Scholars Walk, Room 304
Toronto, ON  
M3J 1P3
T: 416 731 6432
iepstein@yorku.ca

Dr. Roxanne Mykitiuk
Director, Disability Law Intensive Program
Osgoode Hall Law School, 4700 Keele St.
Toronto, ON
M3J 1P3
T: 416 736 5204
rmykitiuk@osgoode.yorku.ca

Purpose of the Research:
This research is evaluating the pilot of the ACTon Resource Hub. The ACTon Resource hub seeks to support students and instructors to communicate about disability accommodation in Experiential Education (EE) and placement programs. Everyone who has engaged with the hub between December 2021-April 2022 is invited to participate in an online survey. The survey will collect anonymous data on: user demographics, how you engaged with the resources; and any impact the resource may have had on how to communicate about disability accommodation in experiential education (EE) and placement programs. Participant feedback will inform future developments of the ACTon hub. It will be published in academic publications, conferences and presented in community reports on project impact.

What You Will Be Asked to Do in the Research:
You are being asked to answer an anonymous online survey we expect will take approximately 15-20 minutes to complete. After you have finished answering survey questions, you will be asked if you want to further participate in an one-on-one think aloud interview about your experience navigating the different paths in the resource and thinking aloud. If you are interested in being interviewed, a member of the research team will contact you to set up a time to meet online or face to face (if permitted by institution given COVID).

Risks and Discomforts:
We do not foresee any significant risks to engaging in this evaluation research. You may experience some discomfort providing your answers to the survey if you have feedback you feel will be perceived as negative by the research team. We want to hear the good and the bad parts of engaging with the ACTon Hub. This will lead to more comprehensive developments. Your participation would be anonymous.

Benefits of the Research and Benefits to You:
The short term benefits include giving students and faculty opportunities to voice their concerns and perspectives on resources that aim to support the inclusion of disabled students and other students in post secondary educations. The information participants will gained from this research will a) directly benefit disabled students in their transition to gaining employment’s) b) benefit students and support equal access and accommodation in practicum placement; c) Support faculty, staff in learning and collaborating with other disciplines and accommodation opportunities they implement.

Voluntary Participation and Withdrawal:
Your participation in the study is completely voluntary and you may choose to stop participating at any time.  Your decision not to volunteer, to stop participating, or to refuse to answer particular questions will not influence the nature of the ongoing relationship you may have with the researchers or study staff, or the nature of your relationship with York University either now, or in the future. If you are a student who has been asked to engage with the ACTon hub as part of your course your decision to volunteer in the pilot evaluation, to stop participating or to refuse to answer particular questions in the survey will have no impact on your academic standing in the course nor will it influence your relationship with the course instructor.

In the event you withdraw from the study, all associated data collected will be immediately destroyed wherever possible. Should you wish to withdraw after the study, you will have the option to also withdraw your data up until the analysis is complete.

Confidentiality:
Unless you choose otherwise, your participation in this evaluation research will be anonymous. All recorded information will be anonymized. All information you supply during the research will be held in confidence and your name will not appear in any report or publication of the research.  All survey and recorded data will be safely stored on a secure, password protected server and only the research team will have access to this information. Identifiable data, only collected if you wish to be interviewed, will be stored separately and only accessible to the research team for the purpose of contacting you about the interview process. All data will be stored for seven years and in March 2029 the data will be permanently deleted. Confidentiality will be provided to the fullest extent possible by law.

The researcher(s) acknowledge that the host of the online survey (Google Forms) and the video conferencing conducting the think aloud /interviews (e.g., zoom) may automatically collect participant data without their knowledge (i.e., IP addresses.) Although this information may be provided or made accessible to the researchers, it will not be used or saved without participant’s consent on the researchers system. Further, “Because this project employs e-based collection techniques, data may be subject to access by third parties as a result of various security legislation now in place in many countries and thus the confidentiality and privacy of data cannot be guaranteed during web-based transmission.

Questions About the Research?  
If you have questions about the research in general or about your role in the study, please feel free to contact the project’s principal investigators, Dr. Iris Epstein at iepstein@yorku.ca and/or Dr. Roxanne Mykitiuk at rmykitiuk@osgoode.yorku.ca.  

This research has received ethics review and approval by the Delegated Ethics Review Committee, which is delegated authority to review research ethics protocols by the Human Participants Review Sub-Committee, York University’s Ethics Review Board, and conforms to the standards of the Canadian Tri-Council Research Ethics guidelines.  If you have any questions about this process, or about your rights as a participant in the study, please contact the Sr. Manager & Policy Advisor for the Office of Research Ethics, 5th Floor, Kaneff Tower, York University (telephone 416-736-5914 or e-mail ore@yorku.ca).
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