Questionnaire: Social benefits and quality of clinical management for thalassaemia globally
Please answer the following questions about (1) the social benefits of thalassaemia patients in affected countries and (2) the quality of clinical management in your country. TIF will use this data to develop appropriate advocacy actions aiming to promote improvement of social services for thalassaemia patients in affected countries.
Email address *
Full name *
Your answer
Country/ Association *
Your answer
Medical condition *
Which of the following treatment expenses/costs are covered by the State? (Please click "Other" to provide different or additional state-covered expenses that apply in your country e.g., medication costs, prescription costs, costs for secondary conditions etc.) *
Required
Which of the following statements are true for your country? (Please click "Other" to provide any additional information about the availability, cost or state-coverage of iron chelators for thalassaemia patients in your country) *
Required
To what extent does the State cover the expenses of multidisciplinary care in your country? (Please click "Other" to provide any additional information about the cost/coverage of multidisciplinary care for thalassaemia patients in your country) *
Required
What are the social benefits/approaches for thalassaemia patients in your country? (If the options given do not fully describe your country, please click "Other" and specify the situation in your country) *
Required
At what age is early pension given to thalassaemia patients? (If there is no early pension provided, please write "Not provided". If there is anything equivalent to an early pension e.g., disability pension or other, please mention it here) *
Your answer
After how many years of employment is early pension or disability pension given to thalassaemia patients (If there is no early pension or disability pension provided, please write "N/A") *
Your answer
What does the early pension, disability pension or other type of pension include e.g., amounts? (If there is no early or disability pension provided, please write "N/A") *
Your answer
What kind of financial aids and/or coverages do thalassaemia patients receive in your country? (If the options given do not fully describe the situation in your country, click "Other" and specify the situation in your country) *
Required
What are the tax-related benefits available for thalassaemia patients in your country? (If the options given are not fully applicable in your country, please click "Other" and specify the situation in your country.) *
Required
What kind of education-related benefits are available for patients in your country? (If the options given are not applicable in your country, please click "Other" and specify the situation in your country.) *
Required
What kind of work-related benefits are available for thalassaemia patients in your country? (If the options given are not applicable in your country, please click "Other" and specify the situation in your country.) *
Required
There is a psychologist available at the transfusion centre and I can consult him or her any time I need. (If the options given are not fully applicable in your country, please click "Other" and specify the situation in your country) *
Required
In my country, thalassaemia is included in the policy framework of: (If the options given do not fully apply in your country, please click "Other" and specify the situation in your country) *
Required
If there is anything you weren't able to mention above, please mention it here.
Your answer
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