BPS ME/CFS Guidelines Further Participation Survey
If you would like a summary of our findings or are interested in participating in online forums or online focus groups to further input into the British Psychological Society's guidelines on ME/CFS, then please complete the survey below.

Registering your interest at this stage will in no way commit you to further participation. It will just enable us to email you with further details when we are ready.

We apologise for having to collect some of the same information as the previous survey. This is necessary as part of data protection and preserving your anonymity by keeping certain data separate from collecting your email address. 

The closing date to complete this survey has been extended to the 1st of November 2024. If you have any problems or questions, then please email BPSGuideline@meassociation.org.uk
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Would you like to receive a summary of what we learn from the BPS Good Practice Guidelines survey?
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Would you like to stay involved and further help co-produce the guidelines or comment on drafts?
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We are organising focus groups to hear your views in more detail. The first ones will involve attending a one-hour meeting over zoom with 6-8 other people with ME/CFS to talk in more depth about what psychologists need to know about ME/CFS and what the good practice guidelines might include.

Would you potentially be interested in taking part in a focus group? 
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If you have answered yes to any of the above questions or want to stay informed about this project then please can you provide your email address.
We have two provisional dates for the first set of focus groups. 

On this occasion the September focus groups will be for adults of 18 or over. You may be contacted about further focus groups in the future. 

Please note: if there is a lot of interest in the focus groups we may select a random sample of those who express interest. Please do not be disappointed if you are not selected. There will be more opportunities to contribute. We will be in touch after 15 September.

Could you make (please tick all that apply):
If you are aged 18 years or younger, would you potentially be interested in taking part in an online focus group for children and young people?
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Are you:
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Have you ever seen a psychologist or another therapist like a counsellor?
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Do you have experience of severe ME? For example, being house or bed bound.
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If you would like to participate further, such as taking part in a focus group, is there anything we would need to do to help you participate? 
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