What is Rett Syndrome?QUICK FACTS:
—Debilitating neurological (movement) disorder that predominantly affects females. —Baby girls are born "normal" but begin to lose acquired skills between the ages of 1-3 years old. —Caused by a single gene mutation that leads to underproduction of an important brain protein. —The leading genetic cause of severe impairment in girls - most cannot speak, walk or use their hands. —Despite their physical disabilities, girls with Rett Syndrome are believed to be functioning mentally at a much higher level than previously thought. —As prevalent as Cystic Fibrosis, ALS and Huntington's. —Another little girl is born with Rett Syndrome every 90 minutes. —Rett Syndrome is a potentially REVERSIBLE disorder. Research has proven once protein levels are back to normal levels, symptoms subside.
The awareness party will be held on Facebook. Time and date TBA as length will depend on participation. We are looking at October as it is National Rett Awareness Month.