Data Collection and Privacy
The purpose of this survey is to gather specific information from participants relating to SCN2A disorders. All information you share during the course of this survey is done so voluntarily on your part and will be kept strictly confidential and used only in a de-identifiable manner. Absolutely no personally identifiable information (PII) will ever be shared with anyone, for any reason and your responses to our survey questions will never be associated with your or your child’s name.
The information collected will be used to describe the spectrum of the disease and demonstrate a clear, unmet need for more effective treatments. This will help to accelerate research, find better treatments and ultimately a cure for SCN2A Disorders.
Your participation is voluntary and you may discontinue your participation at any time.
Do you wish to continue with the survey on this basis?
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This form was created inside of FamilieSCN2a Foundation.