In the framework of the European 2018 workplan, the International Federation for Spina Bifida and Hydrocephalus (IF) aims to focus on sexuality and body awareness of people with spina bifida and hydrocephalus (SBH). Stigma still exists on sexuality of people with disabilities and there is a need to break taboos and encourage young people, doctors, families and society to openly talk about it.

You are being invited to participate in a research study titled ‘‘Sexuality and Body Awareness of people with Spina Bifida and Hydrocephalus’’. This survey is being done by a Youth Group of people with SBH and coordinated by IF.

The purpose of this research study is to build up a solid basis of evidences on what it is important for young people with SBH about their sexuality and body awareness in order to continue working on the topic. The questionnaire will take you approximately 15 minutes to complete.
Your participation in this study is entirely voluntary and you can withdraw at any time. You are free to omit any question.

We ask you to answer the following questions taking into account that there are not right or wrong answers and that the information collected will be treated confidentially in accordance with the General Data Protection Regulation (GDPR 679/2016).
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