Von-Hippel Lindau Syndrome Project
RareShare has been contacted by a market research group offering a paid opportunity for Von Hippel-Lindau patients and caregivers in Germany, France or the UK to share their experiences through an online digital journal or a web-cam based interview.
If you, or someone you know, qualify and are interested in participating in the project, please contact me at the email address below. Please indicate your country of origin, contact information and whether you are a patient or caregiver. RareShare will forward this to the project sponsor for consideration.
If selected for the project, the information you provide and compensation terms will be strictly between you and the sponsor. RareShare shall not hold or use this information, or be responsible for ensuring compensation
Country of Origin
Are you a patient or caregiver
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This form was created inside of Rare Genomics Institute.