The NW Rare Disease Coalition created this 15-minute survey to learn more about the needs of individuals, families and loved ones affected by rare diseases in Washington State. As a person with a rare disease or caregiver of someone affected by a rare disease, please know we are grateful for you taking the time to respond. Responses to this survey will help us prioritize our efforts to improve the quality of life for Washington's rare diease community.
As a reminder, no identifying information will be gathered for this survey. If you need to contact us, please visit https://nwrare.org/#get-involved