Adventures in Albinism – Well-Being & Community Survey for Adults with Albinism 
Hello and thank you for taking a few minutes to share your experiences.
This short survey is for adults living with albinism and aims to understand how you feel emotionally, socially, and in your day-to-day well-being. Your responses will help shape future mindfulness-based resources, community spaces, and workshops designed to support people with albinism.
Your answers will remain confidential. Please answer as openly as you feel comfortable. There are no right or wrong responses.  
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How old are you?
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  Where do you currently live?  
  Do you identify as...  
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How supported do you feel in daily life as a person with albinism?  (Scale 1–5: Not at all supported → Very supported)  
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  Which areas of life feel most challenging for you at the moment?  
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Which areas do you feel are your personal strengths or sources of pride? Examples might include resilience, creativity, empathy, problem-solving, humour, advocacy, etc.
How would you describe your general emotional well-being in the past month?  
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Have you ever practiced mindfulness, meditation, or positive psychology techniques (for example, gratitude journaling, compassion practice, breathing exercises, etc.)?
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Would you be interested in joining a small online community or group focused on mindfulness and well-being for adults with albinism?  
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If you could suggest 2 topics, themes, or questions to explore in a future discussion, workshop, or podcast episode, what would it be?
What is your best email? (this will remain private and will not be bombarded, I promise!) *
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