Your CRPS Story
I have been living with CRPS for the last 5 1/2 years. During the last two years, I have been working to advocate for our community, increase awareness and make our stories known to the medical community. It is my hope that my blog will be helpful to those who are suffering and that others like you and me, will not feel alone. My vision is to create a section of my blog domain to The CRPS Chronicles where I can share your unique story and your strength. Although our stories are sad and painful, they are also full of hope and resiliency. Thank you for sharing your brave & courageous story! ~ Kelly, The Invisible Warrior from www.theinvisiblewarrior.com
Author of The Invisible Warrior, Kelly
About Kelly
About me: I am a Licensed Clinical Social Worker and live in the Beautiful state of Virginia. I developed CRPS over 5 1.2 years ago when I sprained my ankle on a hike in the Caribbean. I wasn't diagnosed for 4 long years and by that time it had spread to both feet and was coming up my legs. I have been in a wheelchair numerous times but with the help of amazing Physical Therapy teams I have stood back up and walked through the flames. I am an advocate for this awful disease and it is my personal mission to bring awareness to the disease that is taking so many lives and leaving us in tremendous pain! You can read more about me & check out my blog at www.theinvisiblewarrior.com :)
First name
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Age
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Gender
Where are you from? State or County
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How long have you had CRPS (you can count before you were diagnosed)
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What was your initial injury?
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How long did it take for you to get an accurate diagnosis?
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What areas are now affected by CRPS (did it spread) explain.
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What has been the most significant change in your life since developing CRPS? How has CRPS changed your life? explain. (work, relationships, parenting, etc)
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What is one piece of advice you would tell someone who is newly diagnosed with CRPS?
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What would you like for Doctors/Medical Community to know about CRPS?
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What treatments have you undergone? Name of Treatment. Helpful? (yes or no)(ex: Inpatient Ketamine Infusions (5x) yes. The significance of my ketamine treatments were that I felt that it stopped spreads and areas that were affected shrank)
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Has your CRPS ever gone in remission? (yes/no) short explaination
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What are some coping skills that get you through tough days? ex. Medication, meditation/mindfulness, essential oils, distraction, sleep, funny videos, tea, talking with a good friend.
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What current Medications are working for you? Please List. DOSES WILL NOT BE WRITTEN in story. If you don't feel comfortable giving this info you can be general about types of meds. Or skip all together.
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Do you agree to allow theinvisiblewarrior.com to use your story in the CRPS Chronicles? Checking yes, indicates your consent. *
Do you have a Social Media that you would like for others to follow (i.e.: Instagram, FB, Twitter, a Blog). Please list.
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Email address that I may use to contact you with any questions or information on when story will be published *
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Tell me about you in just a few sentences. (Just a few examples: Career? What do you enjoy? Hobbies? Married? Have pets?) I will use this as a short bio
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Thank you for sharing your story! Is there anything else that you would like for me to know?
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