For decades, research into Myalgic Encephalomyelitis (ME), sometimes called ME/CFS, has been hampered by heterogeneous diagnostic criteria and the inclusion of participants who may not actually have ME.
Clinical definitions for ME/CFS have been adopted in many countries, but there is still no consensus around research criteria.
To improve the quality of research a group of individuals—including researchers and people with lived experience of ME/CFS—has created a consensus statement, which has already been signed by researchers, clinicians and representatives of advocacy groups around the world. We agree that the next important step is to demonstrate support from people with ME and their carers.
The group leading this initiative, in consultation with others, comprises Caroline Kingdon and Adam Lowe (both of whom served on the NICE Guideline Committee) and Leonard Jason, an experienced ME/CFS researcher from de Paul University in the US.
You can view the statement and current signatories as a
Google Document or
PDF.
Complete the form below to add your name as a signatory now!
