Parkinson's Disease Healthcare Survey
Information Sheet
Thank you for considering taking part in this research study. Before proceeding to the survey, we will explain what our work is about and what your participation would involve, so you can make an informed choice about taking part.

The aim of this study is to explore the perspectives of people living with Parkinson's disease (PD) in relation to health services and Parkinson's clinics. We also want to know what you think could be changed or improved about these services. Should you choose to take part, you will be asked to complete an online survey about your experience of accessing and using health services for Parkinson’s disease in Ireland. This survey will take about 15 minutes to complete.

Participation in this study is completely voluntary. Should you choose to take part, you can choose not to answer some questions, or you can decide to stop filling out the survey at any time. All information you provide will be confidential and your anonymity will be protected throughout the study. The information you provide to us cannot be traced back to you. The online survey must be completed in one sitting, as the responses cannot be saved online and resumed later.

You can withdraw from the study at any stage up to the point of finishing the survey. At this point your data will be mixed with that of other survey respondents and can no longer be removed. If you submit an incomplete survey, any or all completed items that we receive may be included in our data analysis.

The anonymous survey data will be stored on encrypted and password-protected computers, as well as on the University College Cork secure data storage system. The data will be stored for a minimum of ten years. The information you provide may contribute to research publications, research reports and/or conference presentations.

We do not anticipate any negative outcomes from participating in this study.
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