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Data-only application form to access Genes & Health.
(This form is not to be used for recall studies)
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* Indicates required question
Email
*
Your email
Project Title
*
Your answer
Applicant Details:
Your name
*
Your answer
Your job title
*
Your answer
Your Institution
*
Your answer
Your email (of your Institution, not gmail/hotmail)
*
Your answer
Institution website URL (if available)
Your answer
Where is your application from?
*
Academic Institution
Charity Sector
Life Sciences Industry
NHS partner
Co-applicant details
Name, job title, institution, email
Your answer
Name, job title, institution, email
Your answer
Name, job title, institution, email
Your answer
Name, job title, institution, email
Your answer
Name, job title, institution, email
Your answer
Territories of use
For UK-GDPR purposes, please
list all countries,
including any UK/EEA countries, from which your researchers would access data.
Your answer
Project Summary
Lay summary (250 words)
This will be published on the Genes & Health website and used for publicity and comms. Please avoid complex scientific or clinical terminology. Include the project aims, how the research will be undertaken, and how the results will improve health for British Bangladeshi and British Pakistani, or other South Asian populations.
*
Your answer
Scientific outline (1000 words)
Include background, hypothesis and key aims, methodology, and power calculation if appropriate. Provide details of any pilot studies that support this application.
If requesting access directly to NHS England data, please justify (you may use an additional 250 words).
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Your answer
Datasets to be used (check as appropriate):
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Illumina genotyping
Exome sequencing
Primary care health records
Secondary care health records
NHS England data (e.g. Hospital Episode Statistics; requires sublicence agreement and further approvals)
Other datasets (please discuss)
Required
Planned start date
*
MM
/
DD
/
YYYY
Planned completion date
*
MM
/
DD
/
YYYY
Is the proposed work part of a current or future PhD thesis?
If yes, please provide a non-confidential title or short description of the project and details of institutions directly involved in the supervision. [this will be shared with our funders for reporting purposes]
Your answer
Why do you wish to use G&H for this proposal?
Your answer
Could this study be undertaken elsewhere, e.g. UK Biobank, NIHR Bioresource, Born In Bradford, All of Us, Million Veterans Program? If so, please explain why you wish to use Genes & Health
*
Your answer
Please provide DOIs/URLs to any relevant scientific publications or background material in support of your application.
Your answer
Has your project had any external scientific review?
If so, please provide details.
(you can email any documents to genesandhealth@qmul.ac.uk if you would like to)
Your answer
Does your project raise any potential ethical or sensitive issues or other concerns? If yes, please specify and explain how you would address these.
*
Your answer
Data Security
Note that any participant-level genotype or health record data can only be accessed within the Google Cloud Trusted Research Environment. Summary data can be exported but will be reviewed by the Genes & Health team prior to export.
Describe how you will ensure data security for summary data outside of the data safe haven:
*
Your answer
Please confirm that all project staff will complete the Data Security Awareness (Level 1) training on e-LfH.org.uk? Access to the Genes & Health Trusted Research Environment will not be granted until training has been completed and evidence provided..
*
Yes
No
Please confirm you will return any data you generate to G&H within 6 months of generation, and that this can be made available to other applicants as part of the G&H resource.
*
Yes
No
Acknowledgements and Costs
Please confirm you will use the Genes & Health funding statement for conference abstracts or publications, available
here
*
Yes
No
Please confirm you will comply with our Authorship and Acknowledgments,
here
. This includes use of the 'Genes & Health Research Team' consortium authorship name, with team names as per our list provided in supplementary files.
*
Yes
No
Please confirm that you will cite our cohort profile (available
here
) to provide a description of Genes & Health in conference abstracts and publications.
Yes
No
Clear selection
A costing template is available at:
https://www.genesandhealth.org/researchers/apply-for-access/
. Please confirm that you agree to pay these costs.
*
Yes
No
A copy of your responses will be emailed to the address you provided.
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