Your data The information given on this form will be used to verify your eligibility for SWAN UK membership, to inform our planning and work, and to contact you as detailed below. It will be held according to, and will be subject to, the provisions of the Data Protection Act 1998. SWAN UK (syndromes without a name) will not share your details without your permission. By ticking the box below, you are agreeing to the information on this form being held by Genetic Alliance UK, the charity that runs SWAN UK. For more information on the way we use and store data, please read our Privacy Policy.

Contacting you In accordance with the Data Protection Act and the new General Data Protection Act (GDPR) with effect from 25 May 2018, we would like to use your details to keep you informed about our work and send you further information. Our use of your contact data includes, but is not limited to, sending invitations by email to join our private online forums (Facebook groups), sending a Welcome Pack, sending regular newsletters and sending information about family events. By ticking the box below, you are agreeing to be contacted in these ways.

Connecting you with a SWAN UK Local Parent Rep Some geographical areas have a SWAN UK Local Parent Rep, who are volunteers bound by the same confidentiality and equal opportunities policies as all SWAN UK staff. If a SWAN UK Parent Rep exists in your area we will automatically share your name and email address with them so they can make contact to invite you to local events. We will not share your contact details with other members without your permission.