Research Study for NMD: interactive session with UK families
20/04/2021 - 11am GMT
If you are interested in attending the session, please fill in the registration form:
Email *
1. Name: *
2. Surname(s): *
3. Disease you are interested in: *
4. Country of residence: *
5. Are you registered in Share4Rare? *
6. Do you belong to a patient organization? *
7. If you answered "Yes", could you indicate which one?
9. How did you find out about this activity? *
10. Would you like to receive the Share4Rare newsletter? *
The access link to the conference will be sent by email the day before the event.
Access, rectification or deletion of data, as well as other rights, detailed in the Spanish Organic Law for the Protection of Personal Data (LOPD) and in accordance with Regulation (EU) 2019/679 of the European Parliament and the Council of 27 April 2016 on the protection of people with respect to the processing of personal data as well as the transfer of said data (GDPR), has to be executed through a written communication to
A copy of your responses will be emailed to the address you provided.
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