Course Title: "Policy Advocacy in Genetics and Genomics"
- Start date: 01-September-2025
- Submission of Final Exam: 17-September-2025
- End Date/Final Presentation/Debate: 20 September--2025
The application is open on 20-August-2025 and deadline is on 27-August-2025
This course is designed to provide a comprehensive understanding of policy advocacy in the field of genetics and genomics.
Course Designer: Dr. Wafaa M. Rashed, Chair of PAPERI.
Course Value: This course provides essential knowledge and practical skills for developing and implementing policies in genetics and genomics, empowering you to become an effective advocate in this critical field.
Course Objectives:- Gain a clear understanding of what policy advocacy entails and its importance in the field of genetics and genomics.
- Recognize and understand the roles of key stakeholders in genetics policy, including government agencies, research institutions, and advocacy groups.
- Analyze existing policies and regulations that impact genetic research and applications, focusing on case studies of impactful policies.
- Learn effective communication techniques with policymakers and the importance of building coalitions and alliances.
- Understand the steps involved in policy formulation and the critical role of evidence-based research.
- Explore the balance between innovation and ethics in policy making, and how to address public concerns and misconceptions.
- Review detailed case studies of successful policy advocacy, understanding lessons learned and best practices.
Prerequisites:
- Basic knowledge of genetics, genomics, and related technologies.
- Basic understanding of policy making processes and public health policy.
- A keen interest in the ethical, legal, and social implications of genetic research.
Target Audience:
- Graduate Students: Particularly those in public health, genetics, genomics, bioethics, and related fields.
- Policy Makers and Regulators: Individuals involved in policy making or regulation of genetic research and healthcare.
- Researchers and Academics: Those interested in the policy implications of their research.
- Healthcare Professionals: Professionals looking to understand the policy landscape affecting genetic and genomic medicine.
- Advocacy Groups and NGOs: Members of organizations advocating for ethical standards and policies in genetic research.
