We need YOU! Will you join FDF's campaign for more federal FD/MAS research funding?

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The Fibrous Dysplasia Foundation is has launched a new advocacy campaign for more FD/MAS research funding.

Currently, FD/MAS researchers are ineligible apply to a specific type of federal research funding, and we want to change that. If we are added to this program, it could mean MILLIONS of extra research dollars going to FD/MAS research each year. The specific program is the Peer Reviewed Medical Research Program. It's part of the Congressionally Directed Medical Research Program at the Department of Defense. To be added to this program, we need community members like you to speak up, and explain to your Senators the importance of more FD/MAS research!

If you believe that FD/MAS needs more federal research funding, and you might be interested in sharing that with your Senator, all you have to do is fill out this form!

The Fibrous Dysplasia Foundation will only use the information you provide here to help you participate in this campaign. Your privacy is important to us.

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Title

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Your First Name

Please do not submit anyone's name but your own.

Last name

Please do not submit anyone's name but your own.

How are you affected by FD/MAS

I am a person diagnosed with FD/MAS

I am a parent of a child with FD/MAS

I am a family member of someone with FD/MAS

Other

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Address

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Phone number

There are going to be different ways to get involved. Which actions do you think you are willing to take?

These selections are NOT binding. Your responses will help us plan our campaign, and help us only send you information that's relevant to you.

I would send an email to my Senators (FDF would provide you with sample text)

I would participate in a coordinated social media action (FDF would provide you with the time to post, and sample messages)

I would make one or more phone calls to my Senators offices (FDF would provide you with sample script)

I would send a letter to my Senator (FDF will send you a draft letter for your edits and approval, and then FDF will deliver the letters)

I would visit my in-state Senators office to meet with someone on staff, and explain why this is important to me. (FDF would help you communicate and schedule the meeting, and provide you with informational materials)

I would let other FD/MAS advocates (like FDF staff) reference me by name in private emails or meetings with my Senator, so that my Senator knows that there are real constituents in their state who care about this issue.

What's the best way to get in touch with you to communicate with you about action steps?

Call me at the number I listed above to let me know it's time to call

Text me I listed above to let me know it's time to call

Email me at the email I listed above to let me know it's time to call

Other:

You're almost done!

Can we use the contact information you provided to update your contact record in the Fibrous Dysplasia Foundation database?

Yes, please use my contact information to create or update my record in your contact database.

No thanks. Please only use this information to help me participate in this campaign.

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Optional (really, this is not required!): If you already have a relationship or connection with one of your Senators or a staff member of your Senator, you can tell us about it here.

Relationships can modify how we'll suggest you approach your advocacy.

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