Adults survey

dsdfamilies has secured funding from BBC Children in Need and Big Lottery to consult with parent/carers, young people and health care providers. We also want to learn form the experiences of those who are now adults and have grown up with a DSD (a difference of sex development), CAH or hypospadias.

In this survey, we would like you to reflect on your information and support needs as a child and how we can improve things for those children growing up today with a DSD.

We are collating all the anonymous feedback we receive into a report, the findings of which will help us develop dsdfamilies’ portfolio of work.

Many thanks in advance for your contribution.

Where do you live?
1. Which area of the UK do you live in: *
2. How old are you? *
Your answer
3. How old were you when you found out about your health condition? *
Your answer
4. Can you remember being told about your health condition? *
If yes, who explained it to you?: *
5. Can you comment on how it was explained?
Your answer
6. Where do you get information about your health condition from? (tick as many as you like) : *
7. Would you have liked more information? *
If Yes, what information would you have liked?
Your answer
8. Have you ever met another person with a similar or the same health condition?
9. As a child, would you have likes to meet another young person with a similar or the same health condition?
10. As a child, would you have been interested in any of the following? (tick as many as you like) : *
11. Before we say THANK YOU, is there anything else you want to tell us?
Your answer
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