Problems with your PKU prescriptions?
Report your problems to the NSPKU here.

Why are we collecting this information?
We want to find out where there are problems in the system for people with PKU. We may share anonymous information with the NHS, MPs, government or healthcare organisations and others in the course of our work.

We may publish anonymous data in aggregated form in academic journals or elsewhere as part of our work to improve services and care for people with PKU. Your free text responses may be used. Your postcode will not be published.

Do you need practical help now?
The NSPKU can provide practical help. If you want someone from the NSPKU to contact you, there is an option to tell us this at the end of this form.

Are you...
Is the patient with PKU...
Is the patient with PKU...
Is the patient in a high risk group?
Tell us the patients postcode... (we ask so we can identify areas of the country with particular problems, the postcode will not be published)
Your answer
Which type of PKU product are you having difficulties with? (tick any)
How long has this problem been occurring?
What kind of problem are you experiencing? (Tick any that apply to you)
Do you want to tell us in your own words about the problem and the effect it has had on you? (optional)
Your answer
What impact has the problems had on the patient/carer? (Tick any that apply)
Do you want help from the NSPKU? Provide your name and contact details and we will get back to you. (Your enquiry and personal details will be confidential)
Your answer
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