Making it Better: An Osteosarcoma Patient Guidebook
Patient/ Parent/Caregiver Questionnaire
As we prepare for our Conference and live every day determined to Make It Better for our Osteo Warriors and Families, we ask you to be kind enough to share your experiences and thoughts with us in the hope that we can make this road smoother for those to come. Together we can make a difference.

This survey is in 4 sections- Introduction, Silver Linings, Grey Skies and Recovery. The introduction questions are required (anonymous is a valid response) and the rest are optional so you can share as you choose.

Please share things you learned that were helpful to you, your child and your family during the time of diagnosis, treatment and after treatment. Caregivers are invaluable during this time. If you are a caregiver completing the survey, please consider your answers to questions related to 'your child' even if you are not the parent.

Should you have any questions about the survey please feel free to email Maureen or Tom at We will get back to you quickly!

Your support is greatly appreciated and we look forward to reading your replies!

Name (or type 'Anonymous" if you choose)
Your answer
Patient's age at diagnosis
Your answer
Patient's current age
Your answer
What is your current status?
Your perspective is based upon being in role of...
What city, state and country did patient live when diagnosed?
Your answer
Approximately how long had patient lived in this area prior to diagnosis"?
Your answer
Has any genetic profiling been done on the tumor or a parent? What company or organization did the genetic profile testing? Would you be willing to share the results with us if asked?
Your answer
Your assistance is greatly appreciated and we would like to list you as a contributor to this guidebook. How would you like your name listed? (you may list anonymous)
Your answer
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