A group of DC-area families with medically complex kids has been going to Capitol Hill and will continue to do so to make our voices heard. We would like to visit your Senator on your behalf – especially if you live in a red state. We’d also like to thank our Democrat Senators for their support as well so we welcome everyone’s participation.
The plan is to present an information fact sheet on your child to your Senator and discuss how proposed healthcare changes will negatively impact kids like ours. We have a binder full of these fact sheets to show that our kids are just kids … who need access to affordable quality healthcare. (Note: It doesn’t have to be your child. If you are an extended family member or friend of the family, we want to hear from you too!)
Here’s what you need to do: (1) Fill out the form below. Try to keep your answers somewhat brief, as we are trying to keep each child's profile (including a photo) to a single page; and (2) Email 1-2 photos (that you are willing for us to share) to us at firstname.lastname@example.org;(3) Contact your Senator's office and let the staffer in charge of healthcare know to expect our visit (use the script below); (4) (optional) email any additional documents (letters, etc.) that you would like us to drop off to us at email@example.com.
If you live in the DC-area, please join us! We will be going to Capitol Hill all week. We hope to make a visible impact by showing up in person and as part of a group; they can see our kids' trachs and ventilators and oxygen tanks and feeding tubes and whatnot, but more importantly, they can also see that these are real kids; kids who go to school and love to play, and are funny and kind and mischievous and amazing, and deserve access to healthcare.
Please feel free to contact us at firstname.lastname@example.org with any questions.
*****This link contains a list of all the healthcare staffers for Republican senators: http://www.istrumpcarestilldead.com/staffers/
Sample script to use when calling your senators: Hi, I'm [NAME], I am from [CITY/ZIP CODE]. I am calling because my child is/has [BRIEF STATEMENT OF MEDICAL STATUS/NEEDS] and access to affordable quality healthcare is very important to us. My friends live in the DC area, and I would like to make an appointment for 10-15 minutes to discuss healthcare issues. They will also drop off a letter and some information on my behalf. I would greatly appreciate it if you could meet with them and hear my concerns. Thank you so much for your time.