Lactation Spectrum Survey
2021 Copyright Genny Stiller C-PNP, IBCLC
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Thank you for your participation in the Lactation Spectrum Survey (LSS). No part of this survey may be copied or reproduced. Responses will be recorded confidentially and used for current and future research by Genny Stiller IBCLC. Do you understand these conditions and consent to the terms of use of your responses by Genny Stiller IBCLC? *
Are you 18 years or older? *
You must be 18 years or older to participate in this survey.
What is your current age?
Have you been formally diagnosed Autistic (ASD), Autism Spectrum Condition (ASC), Asperger's Syndrome (AS), or Sensory Processing Condition (SPC) by a medical professional?
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At what age were you diagnosed?
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Do you self identify as ASD, ASC, AS, SPC, or as neurodiverse without a formal diagnosis?
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At what age did you self identify?
Did you share the ASD, ASC, AS, SPC, or neurodiverse identity with any of your medical providers during pregnancy, birth, or lactation?
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What is the best way for a health care provider to inquire about your neurodiversity?
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Are you aware of any personal sensory preferences and/or aversions (things you avoid)?
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What are your sensory preferences and/or aversions?
Did you share your sensory preferences and/or aversions with your partner?
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Did you consider your sensory preferences and/or aversions when preparing for birth or lactation?
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Did you take any steps to manage your sensory preferences and/or aversions?
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If you answered yes to the above question, what did you do?
Did you experience an increased intensity in your preferences and/or aversions during your lactation experience(s)?
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Can you identify a specific sensory experience(s) during lactation that felt extremely intense, overwhelming, or intolerable? Such as the sound of infant crying, infant suckling sensation, or the let down.
What sensory details made breast-feeding difficult or challenging in your experience?
Would you say that you notice small sounds when others do not?
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Would you say that you often heard your baby when others did not?
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When feeding your infant at the breast, did you experience a delay in your let down as a result of sensory overstimulation?
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When feeding your infant at the breast, did you experience a delay in your let down as a result of sensory aversion(s)?
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When expressing milk with your hands or a pump did you experience a delay in your let down as a result of sensory overstimulation?
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When expressing milk with your hands or a pump did you experience a delay in your let down as a result of sensory aversion(s)?
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Do you think any of the following would have decreased your overstimulation while breastfeeding?
Do you think any of the following would have decreased your aversions while breastfeeding?
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