KNOW MY HISTIO STORY

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#Know My Histio Story is a global social media initiative to encourage patients, families and friends to share their stories so that we may raise awareness for histiocytic disorders. Histiocytic disorders impact every patient and family differently and it’s time the world KNOWS about histiocytic disorders!

Please share with us how your life has been affected by a histiocytic disorder (as someone with the disease, caregiver or family member). What can you share with others so they KNOW HISTIO?

Feel free to share your story or even a quote that you find inspiring. Please limit your story to 500 words.

Stories and/or videos will be shared on the Histiocytosis Association's social media platforms using #KnowMyHistioStory throughout the month of September.

Submit your story today and let's get the world talking about Histiocytosis!

Email *

Name (person submitting story) *

Phone Number

City, State or Country *

Warrior Name (first name only) *

Age of Warrior

Warrior Diagnosis (check all that apply) *

Langerhans cell histiocytosis (LCH)

Pulmonary Langerhans cell histiocytosis (PLCH)

Hemophagocytic lymphohistiocytosis (HLH)

Erdheim-Chester disease (ECD)

Juvenile xanthogranuloma (JXG)

Rosai-Dorfman disease (RDD)

Other:

Required

What would you like people to KNOW about Histio? *

I give permission to the Histiocytosis Association to share my name and story? *

Yes

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