The Epilepsies Action Network (EAN) spent the summer seeking
YOUR top three policy priorities, as they pertain to increased federal funding for the epilepsies. You can see feedback received in this blog post LINK. As you may recall, we asked stakeholders to prioritize ideas that translate to improved care and outcomes for those living with the epilepsies among other criteria. Feedback was received across 5 areas including:
1. Surveillance
2. Comprehensive Care
3. Research & Clinical Care Coordination
4. Reimbursement/Payor Issues
5. Specific Funding Proposals
Now we seek any inputs you might like to share regarding what has been received. Take a few minutes to share any additional inputs you might have. And be sure to sign up for EAN's next briefing on 10/4 where we will distill priorities into targets and tactics. Register here.
Replies are requested by Sept 21.
BACKGROUND:
We appreciate your time and look forward to continuing to work together to increase federal investment in the epilepsies! If you have any questions or need further assistance, please contact: ilene Miller at
ilenepennmiller@gmail.com or Katie Collins at
kcollins@G2Gconsulting.com