The Enemy Within - Questionnaire
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Participant information and consent
Please read the following information and check "I Agree" at the bottom of this page if you wish to provide your consent to participate in this study. If you do not wish to participate in this study, you should close the browser.
Information about the study
This study seeks to investigate how well an original web-based computer game, The Enemy Within, communicates information about the progression of cancer.

Participants will be requested to complete a questionnaire. During this questionnaire, participants will be prompted to play the game in a separate browser tab. This will take approximately 20 minutes.

The game will involve completing a short tutorial, followed by one play through of the main game. Instruction on how to play are embedded within the game.

Upon finishing the game, participants should return to the questionnaire browser tab and complete the second part of the questionnaire. Note - no responses will be recorded until this second half has been fully completed.

The questionnaire will ask participants a series of questions related to their understanding of cancer and the factors that impact on the progression of cancer.

Participants will not be asked to submit personal sensitive data as part of this study. The emphasis of the questions will be on participant understanding, having played the game.

The complete session should take about 30 minutes to complete.

Participants will be required to complete the entire study, including the game and questionnaire, while sat at a computer.

Participants are free to withdraw from completing the study at any time and for any reason. As all data will be fully anonymised at the point of submission (no data will be collected that will make it possible to identify the participant) it will not be possible to withdraw your consent to use data once it is submitted.
Retention of research data
Researchers are obliged to retain research data for up to 10 years’ post-publication, however your anonymised research data may be retained indefinitely (e.g., so that researchers engage in open practice and other researchers can access their data to confirm the conclusions of published work). Researchers retain consent forms for as long as we continue to hold information about the data subject and for 10 years for published research (including Research Degree thesis).
Privacy notice and legal basis for processing
Abertay University (the “University”/”we”) is committed to protecting the privacy and security of your personal data in accordance with the Data Protection Act 2018 (or any successor legislation) and (EU) 2016/679 the General Data Protection Regulation (“GDPR”) (and any other directly applicable EU regulation relating to privacy) (together “Data Protection Law”). This research has been approved by the Ethics Committee of Abertay University. The research team adhere to the Ethical guidelines of the principles of the Declaration of Helsinki, 2013 and the principles of the General Data Protection Regulations (GDPR). The Abertay University Privacy Notice for Research Participants is available at https://www.abertay.ac.uk/legal/ . General information on Data Protection law is available from the Information Commissioner’s Office.

For research involving living humans, the Data Controller adheres to, and collects, processes and handles/archives data in compliance with:

Article 6 (1) e: processing is necessary for the performance of a task carried out in the public interest or in the exercise of official authority vested in the controller.
Article 9 (2) j: processing is necessary for archiving purposes in the public interest, scientific or historical research purposes or statistical purposes in accordance with Article 89(1) based on Union or Member State law which shall be proportionate to the aim pursued, respect the essence of the right to data protection and provide for suitable and specific measures to safeguard the fundamental rights and the interests of the data subject.

Where applicable, this form is prepared in consultation with Article 13 of EU GDPR legislation, detailing the information to be provided where personal data are collected from the data subject.

If you have any complaints/queries as a result of taking part in this research you may address them to the Researchers in the first instance (contact details above), researchethics@abertay.ac.uk, or to the University Data Protection Officer if necessary.

I consent to take part in this study conducted by Dr Robin Sloan and Dr Adrian Saurin who intend to use my data for further research examining the use of digital games to improve understanding of the factors that impact upon the progression of cancer. *
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