Understanding the Lifestyle Impacts of Lyme Disease
Title of research project: Understanding the Impact of Emerging Infectious Diseases in Human Populations in the Northeastern United States: The Case for Lyme Disease. Principal Investigator and Faculty Advisor: Ms. Amanda Roome is a Biomedical Anthropologist and doctoral student (PhD Program). Dr. Ralph Garruto is a biomedical research scientist and professor at the State University of New York at Binghamton (Binghamton University).You are invited to participate in a research study on the impacts the emergence of Lyme disease is having on human populations in the Northeastern United States. We hope to learn how individuals (Lyme patients and non-Lyme individuals) adapt to emerging infectious diseases and assess how their lifestyles (physical and social activity, dietary, emotional and sleep patterns, and overall health, and prevention measures for tick bites) are affected. This information will help public health officials and the medical community to better understand Lyme disease and how it affects human health. There will be approximately 400 subjects involved in this study. This questionnaire should take you approximately 35 minutes to complete. The data we gather will be reported without your name or other personal identifiers and will be kept secure and confidential. There is no foreseeable risk and we cannot guarantee that you will receive direct benefits from this study. If any of the questions make you feel uncomfortable or distressed, please feel free to skip any question or stop at any time. Your participation in this research is completely voluntary and you may decide to discontinue participating at any time. You may skip any questions on the survey that you do not wish to answer. If you have any questions, please feel free to ask before beginning the survey or at any time during or after the study. Amanda Roome can be reached at
. If you have any additional questions, concerns, or complaints later or wish to report a research related problem, Dr. Garruto, (607) 777-6562, will be happy to answer them. If at any time you have questions concerning your rights as a research subject or you have questions, concerns, or complaints about the research you may call Binghamton University's Human Subject's Research Review Committee at (607) 777-3818. You will be given a copy of this form to keep. You are making a decision whether or not to participate in this study. Checking “I agree” below indicates that you are at least 18 years old, have read and understand the nature of the project, and have agreed to participate. Checking “I disagree below” will remove your answers from the study. Surveys are kept anonymous and information given is kept confidential.
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