What are the most important needs of ME Patients?
Background:
An ME patient and member of the ME/FM Society of BC is preparing her will and looking for options for an endowment fund.
The idea is that a lump sum of money is donated from her estate, a fund administrator is set up, and each year grants are given from the interest. Others can contribute to the fund. And hopefully it will encourage others to set up funds as well, and act as awareness-raising for the disease.
She is looking to the ME community for feedback on what are patients' most pressing needs, and will use this feedback to focus the purpose of the fund.