Lifetime Survivor’s Network Application
Welcome to the Lifetime Survivor’s Network!

We are a national network of people who have been living with HIV since birth or early childhood. We experience a lot of the same effects that come from aging with HIV as other long-term survivors from delays in diagnosis and early HIV treatment advances, as well as the already existing consequences of aging except we are experiencing these issues at much younger ages.

The purpose of our network is to center and uplift the needs of Lifetime survivors in policy, advocacy, research, services, treatment and care and overall quality of life.  The mission is to advocate for healthcare policy changes and ensure lifetime survivors are included in the development, decision-making, delivery and evaluation of the federal HIV policy and research agenda. Our vision is to increase awareness about the impact of HIV on people living with HIV since birth or early childhood at every stage of the HIV Continuum.


There were 37,968 new HIV infections in the US in 2018. Less than 1% or 65 of those new infections were from perinatal transmission. In 2018, there were 1,042,270 people living with HIV/AIDS in the U.S. This number is also very small, but 1,544 were amongst Lifetime Survivors under the age of 13. However, there is a bigger group of Lifetime Survivors that we believe gets left out and lost within the general population of people living and aging with HIV. The larger group of children who were born positive in the mid 80’s and 90’s who are now adolescents and adults. In 2018 there were more than 12,310 Lifetime Survivors over the age of 18 aging with HIV/AIDS.


This information does not include those of us who have contracted HIV through blood transfusion at birth or in early childhood. We hope to reach all 12,000+ of those Lifetime Survivors in the U.S. and beyond, as well as connect you all to our safe space, our community!


Please complete the form below to let us know in what capacity you would like to be apart of the network. This form helps us understand the level of engagement you are willing to be involved and how to communicate best with you. Let us know if you have any specific requirements or if there is anything we can do to assist you in this process. You don’t have to be open or active in the community to join. We understand that everyone isn’t interested in being public with their status, with that being said, we support and encourage confidentiality. We only post photos of people on our social media platforms who give their consent. This form is for internal use only.

Once again, we are delighted to welcome you to the Lifetime Survivor’s Family. If you have any questions, concerns, or ideas, please do not hesitate to reach out via our social media platforms or to any member of the community who will be able to facilitate the connection with the leadership team. We are here to support you all in every way possible!!!
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First Name  *
Last Name  *
Date of Birth  *
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Email  *
Race or Nationality? *
Gender? *
Sexual Orientation *
At what age did you contract HIV? *
What level of engagement do you want to be involved in? (Select all that apply) *
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What’s your preferred method of communication? (Select all that apply) *
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What’s  your social media handles?
Are you public or open with your status? *
Is it ok to interact with you on social media? (Select all that apply) *
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Tell us more about yourself (skill sets, community organization work, board and committee work, past engagements, etc.)
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