Dsd families: parent survey
dsdfamilies has secured funding from BBC Children in Need and Big Lottery to consult with parent/carers, young people and health care providers. In this survey, we would like to collect your information and support needs as parents/carers of a child/children with DSD (a difference of sex development), CAH or hypospadias.

We will begin by asking you a bit more information about you and your child(ren).
Then, we would like to know more about what kind of support and information (if any) you and your child(ren) have received, would have liked to have received or feel you might need in the future.

We are collating all the anonymous feedback we receive into a report, the findings of which will help us develop dsdfamilies’ portfolio of work.

Many thanks in advance for your contribution.

Helping your child with their health needs
1. Which area of the UK do you live in? *
How old is your child/ren
2. Child 1: (please complete one section for each of your children with a health conditiion affecting how their hormones work, and/or reproductive organs have developed.) *
Child 2
Child 3
At the point of diagnosis
3. Did you get enough support? *
What helped?
Your answer
What would have been good for you and your family at the time?
Your answer
Support and information now
4. Do you get the right amount of support and information now? *
If yes, please let us know what is useful
Your answer
If no, please let us know what would be useful for you
Your answer
5. What support and information do you think you might need for you and your child in the future? *
Your answer
6. Are you interested in (tick as many as you like): *
7. Before we say THANKYOU, is there anything else you want to tell us?
Your answer
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