We'd like to talk to teenagers living with Cystic Fibrosis
We would like to talk to teenagers living with cystic fibrosis (age between 12-16) and their parents and carers to understand how it feels to live with Cystic Fibrosis and how it affects their day-to-day life so that we can design new digital solutions to make their life easier.

We are carrying out a series of one hour interviews and 2-3 hour sessions at individuals homes next week, across London and the South East and 1 hour Skype interviews for those not based in the South East. We’ll be doing the sessions between Monday 6th and Sunday 12th of February and are happy to be flexible around your lives, for example we could visit/call after school or pop in for breakfast.

If you are interested in taking part, please fill out the form below and we'll give you a call to give you more detail and arrange a time we can come see you. If you would like to participate but the dates don’t work for you, then fill in our form and we might be able to arrange another time.

About us and this project: This is a project funded by the Small Business Research Initiative (http://sbrihealthcare.co.uk/). SBRI Healthcare is an NHS England initiative, led by the country’s 15 Academic Health Science Networks (AHSNs), that co-develops innovative products to address unmet health needs.

We are a team of dedicated health professionals and designers looking to build a product that can support young people living with long term conditions.

Please note all information and opinions gathered will be kept fully secure and confidential. Once all opinions are gathered, they will be anonymised and support the design of the prototype.

Thank You!

If you would like to read more about this specific project brief: http://bit.ly/2klU8ko
General questions
Are you a teenager living with cystic fibrosis or a parent? *
Either a teenager or parent/carer can fill out this form, you'll need to add details for the other person. Please check with your teenager or parent/carer before signing them up.
Where do you live? *
You only need to give us a town, village or borough not your full address
Your answer
Where did you click through from to find this survey? *
For the teenager living with Cystic Fibrosis:
What is your full name? *
Your answer
How old are you? *
We would like to talk to teenagers between 12 and 16.
Your answer
What is your gender? *
In the past 6 months (since July) roughly how many days have you stayed in hospital for reasons related to your Cystic Fibrosis? *
What is your email address?
We will only use your email to contact you to arrange an interview and won't share it with anyone else. We will contact your parent/carer first before emailing you.
Your answer
For the parent/carer:
What is your full name? *
Your answer
What is your email address? *
We will only use your email to contact you to arrange an interview and won't share it with anyone else.
Your answer
What is the best telephone number to reach on? *
We will always try and contact the parent/carer first to arrange an interview and will not conduct interviews without permission from them.
Your answer
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