Investigating Behaviour in Russell-Silver Syndrome
Thank you for your interest in our research. We are currently recruiting adults and children with a confirmed molecular diagnosis of Russel Silver Syndrome (11p15 or MUPD7).

The aim of this research is to investigate behaviour in Russell-Silver syndrome (RSS). This will be assessed in a semi-structured interview in order to assess behaviours such as communication skills and social skills. A further aim of the research is to explore how individuals with RSS learn and to establish whether certain strengths and difficulties are common for these individuals. Cognitive abilities will be measured using a number of different tasks that involve skills such as remembering information, understanding a conversation and making patterns.

Once this form has been completed, you will be sent a full information pack. Completing the form does not commit you and your child to taking part in the research and you are under no obligation to participate. The study has received ethical approval from the Department of Psychology, University of Sheffield and is being supervised by Dr. Megan Freeth and Dr. Elizabeth Milne and PhD student, Chloe Lane. The details you enter will be stored safely in an electronic database which is only accessible by members of the Sheffield Autism Research Group. We value your privacy and no details will be passed to any third parties.

If you have any questions, please email: lkrobinson1@sheffield.ac.uk

What is your child's name? *
Your answer
What is your child's gender? *
What is your child's date of birth? *
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What diagnosis of RSS does your child have? *
Does your child attend school? *
If yes, which school does your child attend?
Your answer
Does your child require one-to-one support in school? *
Other than RSS, does your child have a diagnosis for any other developmental disorder(s)? *
If yes, please list any developmental disorder(s) here.
Your answer
Additional Information
Please provide any extra information/comments that you think might be helpful:
Your answer
Parent/ Caregiver information
Full name of parent/ caregiver *
Your answer
Please provide contact details (email, phone, address) that we can use to contact you: *
Your answer
Please tell us your nearest town or city:
This will help us to arrange your participation in the study.
Your answer
Would you prefer for your child to participate at school or at home? *
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