Rare Disease Day - I am rare because...
This year Rare Disease Day is on February 28th, 2021! This holiday recognizes and raises awareness about the 400 million people affected by rare disease. Policy makers, scientists, and the public come together from around the world to advocate and share the rare disease stories of patients affected. Rare Genomics Institute (RG) wants you to tell us your story by answering the question “I am rare because…”.
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As a rare disease parent or patient, what makes you special or otherwise "rare?" We want you to tell us about what makes you rare so that we can anonymously share your response on or after Rare Disease Day (February 28th, 2021).
I am rare because...[________]
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