Fabry Family Camp
Let's get out of the conference room and get outside together!
The CFA is hosting our first ever Fabry Camp for families in a central location held on the weekend of May 29-31 2020. Camp Manitou is nestled in the great northern forests of Muskoka, Ontario. Your family will have the true experience of camp, and the child in you will enjoy family meals in the dining hall, early morning fishing or canoeing, and campfires under the stars at night. This weekend is about acknowledging Fabry for the whole family, cultivating community, and learning, while having fun in a beautiful surrounding.
DATE: May 29-31, 2020
LOCATION: Camp Manitou in Mckellar, Ontario
1. If you have one or more child(ren)/teen between the ages of 6-20 years of age.
2. One person in your family has been diagnosed with Fabry Disease (Parent, partner, child, or sibling).
We are looking for creative, fun, and spirited leaders who are committed to creating the best experience for our campers and families. If you are interested in volunteering, please fill out the questions below under the Volunteer section. Once your application has been reviewed, you will be contacted by one of the CFA coordinators to discuss further details.
Questions & Answers:
Q. Do we need to bring our own linen? A. Yes, please bring your own sheets (twin size) and towels.
Q. Are meals included? A. Yes, breakfast, lunch, dinner and snacks will be served over the weekend.
Q. Is there any costs associated? A. Flights, transportation to/from camp, and your time at camp will be covered for all families and volunteers. We invite families to have their own fundraising initiatives (this is not mandatory) in your
Q. What are the sleeping arrangements? A. Each family will enjoy a woodsy cabin for the duration of their stay. Your cabin comes equipped with ample sleeping arrangements with enough comfy bunk beds for everyone.
Q. What activities are available at camp? A. Ropes course, climbing wall, archery, creative arts, field games, culinary arts, slip ’n’ slide, mini putt, baseball, tennis, various land sports, canoe & kayak, fire-building/outdoor cooking, fishing, and more!
Q. Is it a peanut free facility? A. Camp Manitou is a peanut and tree nut safe facility.
Request: If you or your child(ren) play an instrument, we would love to hear you play around the campfire!
Family & Volunteer Application
List the names of the family members attending Fabry Camp, and put a "*" beside the individuals that are fabry patients.
List the ages of all those attending with their names
Do you or anyone in your family have food allergies/intolerances that we need to be mindful about? if so, please provide the name of the person and the allergy/intolerance.
Do you or anyone in your family have any mobility issues? Please provide details.
Will you need transportation to Camp Manitou, or will you be driving?
Need transportation to Camp Manitou
I will be driving
If you will be flying, what airport will you be departing from?
Would you or anyone in your family be interested in an act in our talent show?
Do you have anything else about you or your family that you would like us to know?
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This form was created inside of Canadian Fabry Association.