Survey for Pianists: Experiences with Focal Hand Dystonia and Pianism Retraining

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Thank you for participating in this research study. Your insights are invaluable to advancing the understanding of focal hand dystonia and the retraining process from a pianist's perspective.There are 2 sections in this questionnaire. Section 1 (Questions 1-5) relate to your experiences with focal hand dystonia (FHD) and Section 2 (Question 6-18) concern your experiences with retraining at the piano (pianism retraining). Most of the questions are open-ended which allows you to be flexible in your answers. You are encouraged to respond honestly and in as much detail as you are comfortable providing. All data collected will be kept strictly confidential and anonymized. They will be used solely for the purposes of this doctoral research project. Your contribution to this study will be highly valuable in helping pianists with FHD.

Note: Email address is collected so that participants can receive a copy of their responses and the research findings/publications.

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Before proceeding to the questionnaire, please indicate your consent by ticking the checkbox below. *

I have received a copy of the Information Sheet describing the research project. Any questions that I have relating to the research have been answered to my satisfaction. I understand that I can ask further questions about the research at any time during my participation, and that I can withdraw my responses within one week after I have submitted the questionnaire. During the online survey, I understand that I am only required to share information that I am comfortable in providing, and I can ask to have a copy of my submitted responses. By ticking this checkbox, I will retain ownership of my questionnaire responses, but I give consent for the researcher to use the collected data for the purposes of the research outlined in the Information Sheet. I understand that my identity will remain confidential in the presentation of the research findings.

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The researcher intends to share the research findings/publications with all participants. Please indicate your choice by ticking the box below. *

I wish to receive a copy of the findings/publications.

I do not wish to receive a copy of the findings/publications.

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SECTION 1

Experiences with Focal Hand Dystonia (Q1-Q5)

1. How many years did you suffer from focal hand dystonia? *

2. What was the severity of your dystonia before retraining? Please rate on a scale from 1 to 5, where 1 is the least severe. *

3. What were the symptoms experienced before retraining? *

4. What were the triggers of your dystonic symptoms? Could you please elaborate on them? (e.g. technical elements like scales, arpeggios etc or emotional stress) *

5. How did focal hand dystonia impact your piano playing ability and your relationship with music prior to retraining? *

SECTION 2

Experiences with Pianism Retraining (Q6-Q18)

6. What was the duration of your retraining program? (e.g. 1 year, 8 months, 5 sessions etc.) *

7. Did you attempt any other treatment before pianism retraining? If yes, please indicate the type of treatment received. *

8. Did you attempt any other treatment as a supplement to pianism retraining? If yes, please indicate the type of treatment received. *

9. If you answered 'Yes' to question 8, how does the supplementary treatment enhance your retraining? *

10. Could you describe the procedures that you have gone through in your pianism retraining? Please list any specific musical exercises/physical exercises/repertoire done as part of the retraining. *

11. What part(s) of the retraining process did you find helpful and why? *

12. What were the challenges or frustrations experienced during the retraining process? *

13. How would you describe the overall effectiveness of your pianism retraining? *

Not at all effective (No improvement in symptoms.)

Somewhat effective (Slight improvement in symptoms.)

Effective (Much improvement in symptoms.)

Highly effective (Significant improvements. Dystonic symptoms have nearly or completely resolved.)

Required

14. How would you rate the severity of your dystonia after completing retraining? Please rate on a scale from 1 to 5, where 1 being the dystonia no longer affects your playing and 5 indicating the dystonia was worst. *

15. What improvements did you notice in your ability to play the piano after undergoing pianism retraining? *

16. What do you think (if any) should be included in your retraining program for increased effectiveness? *

17. How would you describe your relationship with music and the piano after going through pianism retraining? *

18. Do you think that instrumental retraining plays a huge role towards recovering from focal hand dystonia? Why do you think so? *

A copy of your responses will be emailed to the address you provided.

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