Share your story with the NEC Society

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We are committed to building a world without necrotizing enterocolitis (NEC) by raising awareness, empowering our community with information, and driving research. We share stories to show how real families and clinicians are affected by this devastating disease. Our stories demonstrate the urgency of our mission.

If you, as a patient-family or clinician, have been touched by NEC, please share your photos, videos, and story with us, which will be included on our social media pages, website, and materials to help raise awareness and advance the NEC Society's work.

When we post about your story, we will paraphrase what you've shared with us here.

If you are interested in recording your story for us to feature as a video on our Family Stories webpage, please email Sarah@NECsociety.org

Email *

What state and/or country do you live in? *

What is your first and last name? *

Was your child diagnosed with necrotizing enterocolitis (NEC)? *

Yes, my child was diagnosed with NEC.

No, my child was not diagnosed with NEC.

I was diagnosed with NEC when I was an infant, and I would like to share my story.

Other:

What is your child's name? (your child who was affected by NEC) *

Please briefly share how you've been affected by NEC story in 1 - 3 sentences. Please note, the NEC Society will abbreviate your story for social media posts. *

What is one thing you want everyone to know about necrotizing enterocolitis? *

Videos and photos shared on NECsociety.org and our social media pages are public.

The NEC Society will only use your photos/videos to help accelerate our work to build a world without NEC. By sharing your photos/videos on the NEC Society's pages, they will appear online, and we will add a NEC Society watermark to deter anyone from using your image without permission.

Do you grant the NEC Society permission to use your videos/photos and story on social media and NECsociety.org? *

Yes, the NEC Society may use my photos/video.

No, the NEC Society may not use my photos/video.

The NEC Society sometimes re-shares stories after they were originally posted. Are you okay with your story being shared again in the future?

Yes, the NEC Society may share my story again in the future.

No, I only want the NEC Society to share my story once.

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Please email your videos/photos to Sarah@NECsociety.org. If possible, please include a video/photo from your child's NICU hospitalization. *

Got it

Please check the boxes if we can contact you about getting involved in the NEC Society's work (check all that apply)

Research

Education

Advocacy

No, do not contact me

Other:

Can we add you to the NEC Society's email list? *

Yes

A copy of your responses will be emailed to the address you provided.

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