Share your family's story with the NEC Society
The NEC Society is committed to building a world without necrotizing enterocolitis (NEC) by raising awareness, empowering families, and driving research. We are eager to feature families who have been touched by this devastating disease. By highlighting real families, we humanize the disease and help our community understand the urgency of this work.
We invite families who have been affected by NEC to share their family's photos and stories with us. We will use these photos and stories on our social media pages and website to help raise awareness.
If you are comfortable sharing your child's photo(s) and story with the NEC Society to feature publicly on our social media pages and website, please proceed by answering these questions.
PLEASE NOTE: WE WILL NOT BE ABLE TO FEATURE ALL FAMILIES AND PHOTOS THAT ARE SUBMITTED TO THE NEC SOCIETY. WE WILL PRIORITIZE DIVERSE STORIES AND FAMILIES AND PHOTOS THAT ARE HIGH-QUALITY (NOT BLURRY, FOR EXAMPLE).
If/when we post about your family's story, we will likely use our own words to paraphrase what you've shared with us here. We appreciate your kind understanding.
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What state and/or country do you live in? (We want to feature families from around the US/globe)
What is your name?
Was your child diagnosed with necrotizing enterocolitis (NEC)?
Yes, my child was diagnosed with NEC.
No, my child was not diagnosed with NEC.
What is your child's name? (your child who was affected by NEC)
Please briefly share your child's story in 1 - 3 sentences, including her/his name. Please note, the NEC Society will abbreviate your child's story for social media posts.
What is one thing you want everyone to know about necrotizing enterocolitis?
Photos shared on NECsociety.org and our social media pages are publicly accessible.
The NEC Society will only use your photos to help accelerate our work to build a world without NEC. By sharing your photos on the NEC Society's pages, they will be publicly available and there is a risk your photos could be used by others without our knowledge or permission. If used on the NEC Society's pages, your photos will appear with a NEC Society watermark to deter image theft.
Do you grant the NEC Society permission to use your child's photo(s) and story on social media and NECsociety.org?
Yes, the NEC Society may use my photos.
No, the NEC Society may not use my photos.
The NEC Society is currently sourcing stories to raise NEC awareness on TikTok. Would you like us to share your child's story on this platform as well?
The NEC Society sometimes re-shares stories a year or so after they were originally posted. Are you okay with your story being shared again in the future?
Yes, the NEC Society may share my story again in the future.
No, I only want the NEC Society to share my story once.
Please email your child's name and photo(s) to Linseigh@NECsociety.org. If possible, please include a photo from your child's NICU hospitalization.
A copy of your responses will be emailed to the address you provided.
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