Sick Cells Faces of SCD

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The most effective tool you have is your personal story! Sharing your experiences helps people understand why you are advocating for the SCD community.

If you are interested in getting involved by sharing quotes, short stories, or becoming the subject of a vibrant blog, fill out this form. After you submit this form, one of our Sick Cells team members will reach out to discuss the next steps to getting involved in the program.

More information about the Faces of SCD Program can be found on our website: https://www.sickcells.org/

Questions? Email Elodie at eontala@sickcells.org

First Name *

Last Name *

Email Address *

What is your relationship to sickle cell disease? *

Country of Residence

Select any topics that you would like to highlight in your story: (Select all that apply)

Curative Therapy/Gene Therapy

Impact on caregivers, family members, relationships, etc.

Day-to-day life with SCD

Health problems or complications of SCD

Diagnosis, SCT, and/or carrier testing

Advocacy and patient empowerment

Medical care and SCD treatments

Clinical trials and research

Financial burden of SCD

Other:

Why you are interested in sharing your story? Is it to: (Select all that apply)

Change an opinion or break down stereotypes

Share life lessons

Meet other community members that can relate

Spread awareness

Inspire others to take action

Other:

Please share your social media handles if you would like to be tagged.

Consent to Share this Information

By clicking Submit, you understand and agree that Sick Cells may process and use the personal information you have submitted in this survey for purposes of carrying out the Sick Cells Faces of SCD Program.

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