Support for Epilepsy in ACT
This is a short survey seeking feedback on the support that is needed and available for people with epilepsy in the ACT, their families, support network and friends. The information from this survey will assist Epilepsy ACT in their strategic planning to ensure that they continue to meet the needs of those with epilepsy and their support network.
Please select the option that best describes you *
The following questions relate to the person with epilepsy
Age *
How many years have passed since diagnosis?
I/they:
I feel like those in my school/workplace have the information they need to care for me
no
yes definitely
What sort of information is the most valuable for my school or workplace?
Your answer
I/they have a current epilepsy management plan
Do you feel that your/their epilepsy is managed in day to day life?
yes
no
Are you/they currently eligible for NDIS funding to assist in the management of your/their epilepsy?
We want to know about the type of support you feel is most important for those with epilepsy and their families
If you think back to the time of the first signs of epilepsy and initial diagnosis, did you feel comfortable that you had the information you needed?
Can you briefly describe the sort of support that would have assisted during that time?
Your answer
Have you heard of Epilepsy ACT?
If so, which of their services were you aware of?
Have you accessed the support from any of the following Epilepsy organisations?
How did you find out about this/these organisations?
Your answer
If so, was the support you received helpful? What were the best parts about the support? Was there anything lacking?
Your answer
Thank you for your time, is there any other feedback you would like to provide that will assist in ensuring those with epilepsy and their families are well supported?
Your answer
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