Facilitating Intergenerational Dialogue for Advance Care Planning
Dear fellow doulas, end of life supporters, health professionals and later life practitioners,

I am doing research into how end-of-life doulas, hospice workers/volunteers, health professionals and other later life practitioners, assist their clients to undertake conversations about advance care planning (ACP), whether formally or informally, with their next generation relatives or friends (eg sons/daughters/nieces/nephews/cousins/friends). I would be grateful if you would share your experiences of facilitating intergenerational dialogue - or even your reflections on what happens when the next generation isn't involved in planning for end of life.

[A note: I am sensitive to the fact that intergenerational 'planning conversations' are very different when the next generation might be a child, in the case of earlier deaths of, for example, a young parent. This study focuses on older people and the adult next generation, however, if feel called to share what you have learnt about discussing death with children and younger people, who are often so full of insight about these matters, this will be sensitively and warmly received too.]

The findings of my research will be presented at the Elder Mediation World Summit 2018 in May: https://elder-mediation-international.net/bristol-england-2018/ . I will explore the difference between intergenerational conversations (eg. parent/adult children; aunt/nephew; older friend/younger friend), and conversations between people and their peers, or people and their health professionals. I want to look at how sharing in advance planning affects adult children’s experience of their loved one’s end of life, and how older people feel knowing that their adult children (or other next generation relative/friend) have contributed to the expression of their end of life wishes. In parallel, I would like to explore the barriers to these intergenerational conversations and how doulas can ease them.

At the end, I ask you if you'd like a copy of my paper - I'll be happy to share my findings with you. Please leave your email address.

For background, I undertook foundation EOL Doula training with 'Living Well Dying Well' in 2014/5 and am now a health-focussed accredited mediator and dialogue facilitator. I also helped develop Living Well Dying Well's ACP manual (for doulas supporting a person undertaking advance care planning), a project led by Alizoun Dickinson and Hermione Elliott, in 2016. My work centres around exploring dialogue as a tool for wellbeing.

Thanks so much for sharing your insights and experiences. Even brief answers make a real difference and all questions are optional, so just pick the ones you feel you want to answer. All responses will be anonymised, however feel free to add your own anonymising factors if you are referring to people you have supported. I will not use your email address for any other purpose than to contact you about this survey, and then only if you state below that you would like to me. You or your clients will not be identified in any way in my research.

Please submit your questionnaire as soon as possible, and by 1st May 2018.

Best wishes, and thanks again,

Arabella Tresilian
Health & Social Care Mediator

Email address *
Your name (or alias/initials etc)
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What do you call your role? (eg doula, counsellor, adviser, nurse etc)
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The region where you practise:
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How long have you been practising?
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How many people would you say you have worked with?
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If you are a Living Well Dying Well trained Doula, do you use the LWDW Handbook on Advance Care Planning?
YOUR EXPERIENCES OF FACILITATING INTERGENERATIONAL DIALOGUE FOR ACP: I am interested in understanding how practitioners get involved with facilitating dialogue about wishes and hopes for end of life, between a person at the end of their life, and the people who are important to them. Can you share any reflections and learnings about your experiences of 'facilitating dialogue' on Advance Care Planning, or on expressing wishes and hopes for end of life, between: a) a person at the end of their life, and their adult children (or next generation relative/friend); b) a person at the end of their life, and their partners, friends or peers; c) a person at the end of their life, and their health care professionals; d) a combination of all the above?
Your answer
What techniques/tools do you use or recommend to help to foster intergenerational conversations (between people who are dying, and their next generation relatives/friends)?
Your answer
In what ways, does intergenerational dialogue about a person's end of life wishes make a difference to a) the people at their end of life and b) the next generation relatives/friends at or after the older persons's death?
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Would you be happy to engage in an interview with me, by Skype/FaceTime/phone?
Would you like me to email you a copy of my presentation after I have delivered it?
Is there anything else you would like to add, or ask me?
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Thank you!
I'm so grateful to you for taking the time to share your experience and insights.
With warmest wishes,
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