dsd families: healthcare provider survey
dsdfamilies was originally established in 2011 as an educational online platform, answering to the needs of families and young people living with DSD, CAH and hypospadias. Over the past 5 years, dsdfamilies got quickly involved in a vast range of other initiatives seeking to support families and meaningfully change care. In 2016 we became a registered charity.

We have secured funding from BBC Children in Need and the Big Lottery to consult with young people, parent/carers and health care providers on the information and support needs of families with DSD, CAH and hypospadias.

This survey should not take more than 15 minutes to complete.

Many thanks in advance for your input - it will make a difference.

1. What geographical areas do you cover in your work? *
2. How many children do you treat with DSD CAH or hypospadias *
Your answer
PARENT/CARERS
3. What information do you currently have to give to parent/carers: for Newborns? *
Your answer
Infants?
Your answer
Young children?
Your answer
Adolescents?
Your answer
4. If you could create new information, what do you think parents/carers need for: Newborns?
Your answer
Infants?
Your answer
Young children?
Your answer
Adolescents?
Your answer
5. What support is currently available for children with a DSD? *
Your answer
What support do you think the parent/carers need? *
Your answer
CHILDREN (up to the age of 12)
6. What information do you currently have to give to Children (under 12s) on their condition: *
Your answer
If you could create new information, what areas would you like to cover? *
Your answer
7. What support is currently available for children with a DSD? *
Your answer
What support do you think they need? *
Your answer
YOUNG PEOPLE (13-18 years of age)
8. What information do you currently have to give to young people (13-18 years) on their condition: *
Your answer
If you could create new information, what areas would you like to cover? *
Your answer
9. What support is currently available for young people (13-18) with a DSD? *
Your answer
What support do you think they need? *
Your answer
10. Do you think your families would be interested in any of the following (please tick as many as you like): *
Required
11. If you had to prioritise on thing that would make the biggest difference to the families you work with (thinking about their support and information needs), what would this be? *
Your answer
Finally, before we say thank you, is there anything else you would like to add?
Your answer
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