Webinar "International patient registry for rare diseases and COVID-19"
This is the registration form for the webinar where the Share4Rare study on the effects and burden of COVID-19 on rare disease patients will be presented.
Friday, September 18th 2020 at 18:00 pm, Barcelona time zone (UTC+2) and 12:00 pm, NYC time zone, (UTC-4)
Email address *
Name *
Surname/s *
Disease of interest *
Country: *
Do you belong to a patient organization? If so, indicate which one:
Are you a clinician or researcher?
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Where did you find out about the webinar? *
Do you have any question for our speakers? You can write it down below:
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Registration link

The link to access the teleconference system will be sent to you by e-mail the day before the event.
Thank you!


Access, rectification and deletion of data, as well as other rights, as detailed in the Spanish Organic Law on the Protection of Personal Data (LOPD) and Regulation (EU) 2016/679 of the European Parliament and of the Council of 27 April 2016 on the protection of natural persons with regard to the processing of personal data and on the free movement of such data (GDPR), has to be exercised through a written communication to info@share4rare.org
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