2021 Care Rationing Survey
Who Should Take This Survey?

If you, or someone you know, was denied care during COVID due to care rationing, or due to perceptions about limited medical resources, please take this survey to share your story.
If you are a medical professional who witnessed or participated in care rationing, please take this survey.
If you, or someone you know, were almost denied care and you want to share what happened, please take this survey. We will use the statistics and stories to help advocate for access to treatment for people at risk of discrimination.

What Is This Survey About?

During emergencies like the COVID pandemic, when hospitals are overwhelmed with the number of people needing help, they turn to “care rationing.” Care rationing means medical providers limit the types of care they provide to certain people.

Sometimes care rationing means that people will be denied life-saving care and instead will only receive care to help them be more comfortable. When care rationing happens on the basis of certain characteristics, it can be unlawful or wrong. Because COVID precautions often mean patients are without their usual support systems, care rationing can happen behind closed doors without input from family members, friends, support workers, or community. It is important to share stories of discrimination so that all people receive fair treatment.
You can skip questions, however, demographic information is helpful to see whether discrimination is disproportionately impacting people based on race and other unlawful or unfair personal characteristics.
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1) My state’s medical resources are overwhelmed and they may be rationing care now, or they might start soon.
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2) What city, state, and county do you live in?
3) I am disabled or I am a person with a disability.
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4) I am fat or higher weight.
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5) How old are you?
6) What is your race and ethnicity?
7) What is your sex/gender?
8) Are you part of the LGBTQIA+ community? If so, how do you identify?
9) Any other demographic information you would like to share? (For example, religious, spiritual, or cultural background.)
10) If you had difficulty getting (or were denied) medical care due to your weight, disability, age, race, religion/spirituality, sex, gender identity, similar characteristics, or any combination of characteristics, please describe what happened, including when.
11) If someone you personally know had difficulty getting (or was denied) medical care due to weight, disability, age, race, religion/spirituality, sex, gender identity, similar characteristics, or any combination of characteristics, please describe what happened, including when.
12) If you witnessed or participated in the denial of medical care due to weight, disability, age, race, religion/spirituality, sex, gender identity, similar characteristics, or any combination of characteristics, please describe what happened, including when and why.
13) If you or someone you know was denied medical care due to care rationing, but it was NOT related to weight, disability, age, race, religion/spirituality, sex, gender identity, similar characteristics, or any combination of characteristics, please describe what happened, including when and why.
14) For those in the healthcare industry: Did your organization provide any crisis care policies? If so, please describe any concerns you had. If you want to, you may name your organization, but you do not have to.
15) If you, or someone you know, has delayed or avoided care because of fear of care rationing, please explain.
16) If you or someone you personally know was denied care, do they still need help?
17) If a volunteer or attorney is available, would you like them to contact you (at no expense to you) to learn more about the situation and help strategize or discuss possible options?
18) Are you willing to share your story with the media, either anonymously or with your name attached?
19) If you are willing to share your story with the media, do you want to do so anonymously?
20) Are you willing to have your story shared, either anonymously or with your name attached, on social media platforms (like Instagram, Facebook, Twitter, etc) to help raise awareness about this important topic?
Please note: (1) This could be an excerpt or your whole story. (2) Media may report on stories that are shared on social media since social media is a public forum.
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21) If you want your story shared on social media with your name, please enter your name here
22) If you said you wanted to be contacted for any reason (either by a volunteer, an attorney, or the media), please provide your name, email, and a phone number.
23) Is there anything else you want to add, or other concerns you want to share?
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