The Cavernoma Society Membership form

Welcome to the Cavernoma Society. We are a small UK charity (No. 1184406), founded in 2019 by people with lived experience of cavernoma. Our organisation is run entirely by volunteers, and we are deeply proud of the supportive, compassionate community we’ve built together.

All of our services are completely free, and by becoming a member you gain access to a range of support: our counselling service, healing retreats, online support groups, and help with benefits. Membership also allows us to connect you with others who truly understand life with cavernoma.

Once you register, we’ll also send you a link to our private Facebook support group—an encouraging, safe space where members share experiences, advice, and friendship.

Thank you for signing up and becoming part of our cavernoma community. Your presence strengthens us all. #TogetherStrong

Email *
Full Name *
What's your address *
What hospital are you being treated at?  *
Age *
Are you a.... *
Please tell us a bit about your cavernoma story. This can be anything from: when you were diagnosed, how you found out about your cavernoma, do you have the genetic condition or the sporadic form, have you had surgery, what you symptoms are, what you've learned, and how you manage on a daily basis? *
How old were you/your family member when you/they were diagnosed? *
What would you like to get from this community? Do you feel you know enough about cavernoma? What tools and resources would help you? *
Which of the following resources would you use if they were available  via the platform? *
Required
How much do you feel you know about cavernoma? *
Required
Is there anything you'd like to add?
Disclaimer
All of your answers are conditional and will not be shared with anyone outside of the charity. This information will be stored under Data Protection Laws and used to verify you and make sure that this group will be suitable to your needs. By completing this information and joining this group, you agree to become a member of The Cavernoma Society (a Registered Charity in England and Wales: 1184406). This is completely free and requires nothing on your part.
Would you like to sign up to our newsletter? We promise we won't spam you! *
A copy of your responses will be emailed to the address you provided.
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